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Everything You Wanted to Know But Never Asked About CCFA

May 14, 2016
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| Categories: Camp Oasis, CCFA, colitis, Colitis Ninja, Crohn's Disease, Crohns, Crohns and Colitis Awareness Week, Crohns and Colitis Foundation of America, IBD, IBD Awareness, indeterminate colitis, inflammatory bowel disease, j-pouch, microbiota, raise awareness, Ulcerative Colitis, Ulcerative Colits, Uncategorized, World IBD Day

Everything You Wanted to Know About CCFA While I was in Michigan last month, one of the doctors said something that struck me. She said, “There are a lot of misconceptions about the Crohn’s and Colitis Foundation of America (CCFA). People think they’re all about money and doctors and pharmaceutical companies. But they are actually patient-focused and have some…

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Patient-Driven Research. What!?

January 30, 2016
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| Categories: #ColitisNinja, #IBDNinja, Autoimmune Disease, awareness, chronic illness, colitis, Colitis Ninja, colon, colonoscopies, Community, Crohn's Disease, Crohns, Disease, IBD, IBD Awareness, indeterminate colitis, inflammatory bowel disease, irritable bowel syndrome, j-pouch, Ostomy, Peter Higgins, raise awareness, UC, Ulcerative Colitis

If you’re like me, when you think about research, you think of doctors and scientists that are higher up in the hierarchy of life who come up with the areas of research, conduct the studies and then come back and inform us of the results. Very disconnected. Oftentimes I feel like an outsider looking in. At least there’s research…

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