Everything You Wanted to Know But Never Asked About CCFA

Everything You Wanted to Know About CCFA While I was in Michigan last month, one of the doctors said something that struck me. She said, “There are a lot of misconceptions about the Crohn’s and Colitis Foundation of America (CCFA). People think they’re all about money and doctors and pharmaceutical companies. But they are actually patient-focused and have some…

Read more ›

BioExperience

Last week I (along with several other advocates) was given the amazing opportunity to tour Janssen’s labs where they produce Remicade. It was an absolutely incredible experience and today I want to tell you a little bit about it and how it was a big eye-opener for me. Upon meeting several Janssen employees and the president, Michael Yang, the…

Read more ›

The Dangers of Miracle Cures

“I drank coconut juice for two weeks and cured my Crohn’s Disease!” “My cousin cured his colitis by taking slippery elm!” “When I cut out dairy, it cured my IBD!!!” How many of you have heard phrases similar to these? If I’ve heard it once, I’ve heard it a dozen times. Have you tried…? It will CURE you! All these “cures” and home…

Read more ›

Are you really what you eat?

Food is a touchy subject for people with Crohn’s Disease and Ulcerative Colitis. These diseases are so  diverse, it’s difficult to pinpoint problematic food. Some of us cannot eat leafy greens. Others cannot eat meat. Most of us, when we find our safe foods, will eat the same things over and over and over again. It usually isn’t the…

Read more ›